Hypochondroplasia Foundation
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    • Home
    • About Us
      • About Us
      • Mission
      • Board of Directors
      • Medical Advisory Board
      • Events & Webinars
      • Partners
      • Get Involved
    • For Families
      • Practical Guides
      • Facebook Group
      • Possible Diagnosis
      • New Diagnosis
      • Understanding HCH
      • Neurological Symptoms
      • Childhood
      • Teenage Years
      • Adulthood
      • Ear, Nose and Throat
      • Treatment Options
      • Family Support
      • HCH FAQ
    • Research
      • Research Overview
      • Clinical Trials
      • Patient Registry
      • Publications
      • Research Participation
      • For Medical Professionals
      • Research Partners
      • Genetic Testing
      • FGFR3 and the Brain
      • Ear, Nose and Throat
    • Contact Us
Hypochondroplasia Foundation
  • Home
  • About Us
    • About Us
    • Mission
    • Board of Directors
    • Medical Advisory Board
    • Events & Webinars
    • Partners
    • Get Involved
  • For Families
    • Practical Guides
    • Facebook Group
    • Possible Diagnosis
    • New Diagnosis
    • Understanding HCH
    • Neurological Symptoms
    • Childhood
    • Teenage Years
    • Adulthood
    • Ear, Nose and Throat
    • Treatment Options
    • Family Support
    • HCH FAQ
  • Research
    • Research Overview
    • Clinical Trials
    • Patient Registry
    • Publications
    • Research Participation
    • For Medical Professionals
    • Research Partners
    • Genetic Testing
    • FGFR3 and the Brain
    • Ear, Nose and Throat
  • Contact Us

Board of Directors

Smiling person with short blonde hair and glasses in a dark blue shirt.

Reni Pekala

Reni brings over 20 years of experience from a leading multinational consulting firm, where she built deep expertise across Technology, Financial Services, and FMCG industries. Today, she leads her own executive coaching practice, supporting leaders to strengthen their leadership capabilities and drive impactful change.

Beyond her professional achievements, Reni, mother to a daughter with HCH, has been a dedicated and passionate advocate for the HCH community for more than 15 years. She plays a central role as the co-lead of the Hypochondroplasia Families Facebook Support Group, where she has fostered connection, guidance, and support for families. Her long-standing involvement reflects her deep commitment to empowering and supporting the global HCH community.

Outside of work, she enjoys reading, walking, and learning new languages.

Dr. Ildikó Bartus

Ildikó is an Assistant Professor at MATE, where she teaches business economics, innovation management, finance, and related subjects. She holds a PhD and conducts research on the effectiveness of European Union funding and community participation in local development. Before joining academia, Ildikó spent eight years as a Senior Account Manager in the communications industry, developing expertise in stakeholder engagement, project management, and strategic collaboration. An experienced board member, Ildikó brings valuable governance and organisational expertise to the Hypochondroplasia Foundation. As the mother of a son with idiopathic short stature, she also offers the perspective of a parent navigating growth-related conditions and is passionate about improving support, information, and opportunities for children and families. She combines academic expertise, strategic thinking, and lived experience to help guide the Foundation's growth and long-term impact. 

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George Boda

As a parent of a child with hypochondroplasia and a telecommunications engineer by profession, he brings both personal insight and technical expertise to his work within the HCH community. His focus is on developing practical tools that enable parents to track their children’s progress over time, empowering families with better visibility and support. He also plays a key role in managing and maintaining the IT systems that underpin the foundation’s activities.

Deeply committed to the HCH community, he combines lived experience with a solutions-driven mindset to improve resources and connectivity for families worldwide.

Outside of his work, he has a strong passion for classical music and enjoys reading across a wide range of subjects, including history, philosophy, and theology.


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