Board of Directors

Reni brings over 20 years of experience from a leading multinational consulting firm, where she built deep expertise across Technology, Financial Services, and FMCG industries. Today, she leads her own executive coaching practice, supporting leaders to strengthen their leadership capabilities and drive impactful change.

Beyond her professional achievements, Reni, mother to a daughter with HCH, has been a dedicated and passionate advocate for the HCH community for more than 15 years. She plays a central role as the co-lead of the Hypochondroplasia Families Facebook Support Group, where she has fostered connection, guidance, and support for families. Her long-standing involvement reflects her deep commitment to empowering and supporting the global HCH community.

Outside of work, she enjoys reading, walking, and learning new languages.

As a parent of a child with hypochondroplasia and a telecommunications engineer by profession, he brings both personal insight and technical expertise to his work within the HCH community. His focus is on developing practical tools that enable parents to track their children’s progress over time, empowering families with better visibility and support. He also plays a key role in managing and maintaining the IT systems that underpin the foundation’s activities.

Deeply committed to the HCH community, he combines lived experience with a solutions-driven mindset to improve resources and connectivity for families worldwide.

Outside of his work, he has a strong passion for classical music and enjoys reading across a wide range of subjects, including history, philosophy, and theology.