Hypochondroplasia Foundation Helpline
The Hypochondroplasia Helpline provides direct support, guidance, and connection for families and individuals affected by HCH.
Date: Every Friday
Time: 12:00 – 14:00 GMT
Language: English
Session Length: 30-minute one-to-one slots
Conferencing application: Microsoft Teams
This helpline offers a safe, supportive space where you can:
- Ask questions about hypochondroplasia
- Talk through concerns or challenges
- Receive guidance and signposting to resources
- Connect with someone who understands the journey
How to Book
30-minute sessions can be booked 24 hours in advance here:
Privacy and Safety
The Hypochondroplasia Foundation is committed to maintaining the highest standards of privacy, confidentiality, and data protection.
- No Recording Policy: Helpline sessions will not be recorded, stored, or monitored by the Foundation. Participants are respectfully requested not to record sessions independently without prior consent.
- Confidentiality: All discussions during helpline sessions are treated as strictly confidential. Information shared will not be disclosed to any third party without your explicit consent, unless required by law.
- Personal Data: Participation in the helpline is voluntary, and you are encouraged to share only the information you are comfortable providing. The Foundation will not retain or process personal data beyond what is necessary for booking and delivering the session.
- GDPR Compliance: Any personal data collected (e.g., for appointment scheduling) will be handled securely and in accordance with the General Data Protection Regulation (EU) 2016/679 (GDPR) and applicable data protection laws.
- Scope of Service: The helpline is intended as a supportive and informational resource only. It does not provide medical, legal, or emergency services. For urgent concerns, participants should contact appropriate healthcare or emergency services.
We are committed to creating a space where you feel safe, respected, and supported.
