Advisory Board

Carrie Blivice is an American artist, photographer and healing arts practitioner with hypochondroplasia. She is the mother of two teenage daughters and has a deep love of nature. Carrie brings her lived experience, creativity and perspective as a parent in addition to having children with Hypochondroplasia.  

Annie Horner lives in Atlanta, Georgia, where she works as a Family Specialist at Children’s Healthcare of Atlanta. She has hypochondroplasia and brings valuable lived and professional insights into how healthcare, research and society can better listen to and include people with rare conditions. A childhood cancer survivor and experienced patient advocate, Annie has also served as a consumer reviewer for the US Department of Defense Peer Reviewed Cancer Research Program, helping ensure that research reflects the priorities and experiences of the people it is intended to serve.